NEOCYST Members at IPNA in Cape Town – International Exchange at the Highest Level

At the IPNA Congress in Cape Town, one of the most significant international meetings in pediatric nephrology, numerous NEOCYST members were present, sharing the latest research findings. This meeting provided an excellent opportunity to engage with leading experts, discuss current developments, and gain valuable insights for future research projects.

Highlights from Our Members’ Contributions:

  • Dr. Wolfgang Ziegler presented on the mechanisms of epithelial cyst formation in PKHD1-KO cells and shared new insights into the pathophysiology of ARPKD.
  • Dr. Jens König presented a case of severe infantile PH1 and discussed promising approaches in RNA therapy.
  • Prof. Lars Pape chaired engaging sessions on the topic of kidney transplantation, fostering insightful discussions and knowledge exchange.
  • Prof. Max Liebau reported on the latest therapeutic developments for polycystic kidney diseases.
  • Dr. Mareike Dahmer-Heath shared her findings on the biomarker DKK3 in renal ciliopathies.
  • Prof. Kathrin Burgmaier presented the latest advancements in ARPKD research.
  • Prof. Franz Schäfer discussed pipeline therapies for chronic kidney disease in children, providing valuable insights into current and future treatment options.

The contributions of the NEOCYST research network, along with those of the international TheRaCil consortium (www.theracil.eu), were recognized for their valuable efforts in the study of rare kidney diseases. The acknowledgment at this high-level congress underscores the importance of our collective work and motivates us to continue advancing research in this field.

We are excited about this successful exchange and look forward to the next steps!

Handmade with Love – Cuddly Toys for a Good Cause

A heartwarming initiative demonstrates the dedication and generosity behind supporting NEOCYST research: The grandmother of a patient lovingly sews unique cuddly toys, with all proceeds donated to the NEOCYST research network.

This effort led to a particularly generous donation during Christmas, making a meaningful contribution to research and showing solidarity with those affected.

We sincerely appreciate this amazing commitment and incredible support!

NEOCYST funding extended for another 3 years!

It is with great pleasure that we can announce that the NEOCYST network was successful in applying for a third funding period. We will be supported by the BMBF for another 3 years (until 2026) and have the opportunity to further advance research on rare childhood kidney disease with exciting new projects.

We look forward to cooperating with all network partners, affected patients and their families!