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WHAT IS NEOCYST?
BACKGROUND
GENERAL INFORMATION
GOALS
IMPLEMENTATION
NEOCYST PROJECTS
P1 – CENTRAL ORGANIZATION
P2 – CLINICAL REGISTRY AND INTERNET PLATFORM
P2.3 – Neuropsychological assessment of NEOCYST patients
P3 – GENETICS
P4 – STANDARD OF CARE GUIDELINES
P5 – TRANSLATIONAL RESEARCH PROJECTS
P6 – ProtCyst
P7 – BIOBANK
MEDICAL BACKGROUND
OF CILIA AND CYSTS
NEPHRONOPHTHISIS
NEPHRONOPHTHISIS AND EXTRARENAL SYMPTOMS
JOUBERT SYNDROME
SENIOR – LØKEN SYNDROME
CONGENITAL OCULOMOTOR APRAXIA TYPE COGAN II (COMA)
JEUNE ASPHYXIATING THORACIC DYSPLASIA
MECKEL – GRUBER SYNDROME
ELLIS van CREVELD SYNDROME
MAINZER – SALDINO SYNDROME
BARDET – BIEDL SYNDROME
HNF1ß – NEPHROPATHY
ARPKD
GUIDELINES
Consensus statement: imaging of kidney cysts and cystic kidney disease in children
International consensus statement: diagnosis and management of autosomal dominant polycystic kidney disease in children and young people
Clinical practice recommendation: perinatal diagnosis, management, and follow-up of cystic renal disease
NEOCYST CONSORTIUM
UNIVERSITY OF MÜNSTER
UNIVERSITY OF COLOGNE
HANNOVER MEDICAL SCHOOL
HUB – HANNOVER UNIFIED BIOBANK
UNIVERSITY OF DUISBURG – ESSEN
UNIVERSITY HOSPITAL FRANKFURT
Center for Human Genetics, Mainz
UNIVERSITY HOSPITAL GIESSEN – MARBURG
UNIVERSITY HOSPITAL HEIDELBERG
UNIVERSITY OF FREIBURG
PARTICIPATING CENTRES
LINKS & PATIENT ORGANISATIONS
PUBLICATIONS
DOWNLOAD & FORMS
CONTACT
LEGAL DISCLOSURE
CONTACT
Dr. med. Jens König
Waldeyerstr. 22
48149 Münster
0251-8356215
