NEOCYST Members at IPNA in Cape Town – International Exchange at the Highest Level

At the IPNA Congress in Cape Town, one of the most significant international meetings in pediatric nephrology, numerous NEOCYST members were present, sharing the latest research findings. This meeting provided an excellent opportunity to engage with leading experts, discuss current developments, and gain valuable insights for future research projects.

Highlights from Our Members’ Contributions:

  • Dr. Wolfgang Ziegler presented on the mechanisms of epithelial cyst formation in PKHD1-KO cells and shared new insights into the pathophysiology of ARPKD.
  • Dr. Jens König presented a case of severe infantile PH1 and discussed promising approaches in RNA therapy.
  • Prof. Lars Pape chaired engaging sessions on the topic of kidney transplantation, fostering insightful discussions and knowledge exchange.
  • Prof. Max Liebau reported on the latest therapeutic developments for polycystic kidney diseases.
  • Dr. Mareike Dahmer-Heath shared her findings on the biomarker DKK3 in renal ciliopathies.
  • Prof. Kathrin Burgmaier presented the latest advancements in ARPKD research.
  • Prof. Franz Schäfer discussed pipeline therapies for chronic kidney disease in children, providing valuable insights into current and future treatment options.

The contributions of the NEOCYST research network, along with those of the international TheRaCil consortium (www.theracil.eu), were recognized for their valuable efforts in the study of rare kidney diseases. The acknowledgment at this high-level congress underscores the importance of our collective work and motivates us to continue advancing research in this field.

We are excited about this successful exchange and look forward to the next steps!